Prenatal genetic screening, epistemic justice, and reproductive autonomy

A Knight, J Miller - Hypatia, 2021 - cambridge.org
… We find a similar view of patient autonomy described in … Whether healthcare professionals
regard termination as a … 14 percent of 29 genetic counselors versus 89 percent of 36 parents …

Genetic Renaissance: A Legal, Philosophical, and Ethical Examination of Consent Using Autonomy & Privacy in Genetic Testing

K Fedjki - 2023 - uwspace.uwaterloo.ca
… Once results of the analysis are obtained, geneticists and genetic counsellors are tasked …
contexts wherein genetic testing is relevant, this project will continue to focus on the research, …

A systematic review of the views of healthcare professionals on the scope of preimplantation genetic testing

M Siermann, Z Claesen, L Pasquier, T Raivio… - … of Community Genetics, 2022 - Springer
… Differences in perspectives on patient autonomy and role of … in PGT, this review shows that
reproductive autonomy is not the … Next to regulations and norms in the country, this review …

[HTML][HTML] Challenges to effective and autonomous genetic testing and counseling for ethno-cultural minorities: a qualitative study

N Cohen-Kfir, ME Bentwich, A Kent, N Dickman… - BMC Medical …, 2020 - Springer
… HCPs working in the field of human genetics and specifically … within the same country. For
instance, some studies in the USA … a different perspective on genetic testing than the majority …

[HTML][HTML] Patients' and professionals' views related to ethical issues in precision medicine: a mixed research synthesis

A Erdmann, C Rehmann-Sutter, C Bozzaro - BMC medical ethics, 2021 - Springer
autonomy of several groups [17], the principle of autonomy is … rights, which have been
recognized by most nations. Here, the … However, studies we include also focused on patients with …

Opinion: redefining the role of the physician in laboratory medicine in the context of emerging technologies, personalised medicine and patient autonomy ('4P …

M Orth, M Averina, S Chatzipanagiotou… - Journal of clinical …, 2019 - jcp.bmj.com
… In addition, EU law requires that each country has a minimum … situation is similar in other
areas such as medical genetics, … data (‘big data’).26 36 In this context, consumer rights are often …

[HTML][HTML] Recontacting patients in clinical genetics services: recommendations of the European Society of Human Genetics

…, European Society of Human Genetics - … of Human Genetics, 2019 - nature.com
… areas even within a single country. There are many drivers for … Interestingly, about 36%
of the patients contacted by … genetic counselling tenets of patient autonomy and the right-not-…

The emergence of the “genetic counseling” profession as a counteraction to past eugenic concepts and practices

S Zuckerman - Bioethics, 2021 - Wiley Online Library
… appreciated the importance of patient autonomy.19 … feminist perspective presented in the
1980s, genetic counseling is … In an ambitious survey, geneticists in all 36 nations where genetic …

[HTML][HTML] Opportunistic genomic screening. Recommendations of the European society of human genetics

…, European Society of Human Genetics - … of Human Genetics, 2021 - nature.com
… in the given European country. Screening programs tend to … provisionally recommends
reporting information on 36 (so-called ‘… With regard to patient autonomy, the SFMPP insists on an …

[HTML][HTML] 'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research

P McCormack, A Kole, S Gainotti… - … of Human Genetics, 2016 - nature.com
… practices in their home country. Participants are concerned … groups indicate that participants
are keen to retain autonomy, … families, 36, 37 and while genetic discrimination is banned in …